The number of patients waiting for an autism diagnosis in Somerset has risen significantly this year, reflecting a nationwide crisis that has left many struggling without the support they need.

New figures from NHS England reveal that 1,355 patients in Somerset were waiting for an autism assessment as of September 2024, up from 1,005 the previous year. Of these, 84%—or 1,135 individuals—had been waiting longer than 13 weeks, far exceeding the NHS target for initial appointments.

Across England, the waiting list for autism assessments has grown to 204,876 patients, a 27% increase from 161,827 the previous year. The median waiting time for a first appointment nationally is now 43 weeks, leaving many in limbo for months—or even years.

Tim Nicholls, assistant director of policy, research, and strategy at the National Autistic Society, described the situation as a "diagnosis wait crisis" and called on the Government to take urgent action.

"Waiting for months or years for an assessment leaves people struggling without the right support, increasingly stressed and anxious. It pushes some people to a mental health crisis," Nicholls said. "Without public investment, this crisis will persist, leaving autistic people, families, and NHS services under immense strain."

An autism diagnosis is often a vital step in accessing support, yet delays mean many individuals are left without help. In Somerset, just 10% of those with open referrals waiting longer than 13 weeks received a first appointment in September.

Nicholls emphasised that people should not need a diagnosis to access support, but for many, it remains a critical barrier. "This broken system is letting down autistic people and their families," he added.

While NHS England acknowledged the challenges, a spokesperson highlighted some progress: "We are seeing an improvement in the number of assessments completed. But we know there is more to do."

The NHS has introduced new national guidance to help local areas deliver better autism assessment services and manage the 161% increase in referrals over the past four years. Enhanced autism training for psychiatrists is also being rolled out to address the growing demand.

The rise in waiting lists comes as families and advocacy groups urge the Government to prioritise autism services. Without significant investment and reform, the diagnosis delays are likely to continue, leaving vulnerable individuals without the support they need.

In Somerset, where the waiting list has grown by hundreds in a single year, the impact of these delays is acutely felt. Campaigners and healthcare providers alike agree that addressing this crisis must become a top priority to ensure that all individuals with suspected autism receive timely and effective care.